kaberett: Trans symbol with Swiss Army knife tools at other positions around the central circle. (Default)
In that the actual fracture clinic consultant glanced at it and went "yeah, that's broken", so it's just that the generalists in the minor injuries unit aren't used to being asked to deal with anything this, er, minor.

Which also means I need to go back in another three weeks' time (because MIU said "... go in to see the fracture clinic ASAP", and the fracture clinic went "... it's not been six weeks, we really don't care") for another X-ray to confirm that my foot still contains bones, at which point I am theoretically cleared for a full return to normal activity.

As it is I actually stopped wearing the boot a... week or so ago now? Because it was initially helpful, but it was throwing my hips and knees out badly enough that now that the pain's subsided to "maybe don't walk up stairs on the balls of your feet, Alex" it's not quite worth it.
kaberett: Photo of a pile of old leather-bound books. (books)
Paper: currently at the point where every time I think I can write a sentence, I end up disappearing into the rabbit-hole of double-checking references and re-wrangling data for an hour or two. This is A Good Thing, in that it means that I've got to grips with the job in question sufficient to see the small manageable chunks, rather than burying my head in the sand about it. Of course I've just run into a bit of a dead end, at least until I can get my supervisors' input (probably in the new Gregorian year), but happily there are many other paths for me to branch off down.

Relatedly: PhD2048 is dangerous. I'd successfully avoided all previous iterations of the game, which unfortunately meant I wasn't innoculated when this nonsense started doing the rounds.

Foot: bruise came up briefly! Swelling was temporarily visible! Now at the point where I can walk on it around the house a little provided I'm careful and don't push it beyond, ooh, the bedroom-bathroom-kitchen-sofa route before I have a rest. In turn this means I'm wearing the boot a little less (it has so much velcro), which means I'm crossing my legs by default, which means I'm putting weight through my foot awkwardly, which... means I'm wearing the boot more again! But so it goes.

Thyroid: I'm feeling hypothyroid-ish worse again but my numbers are now pushing toward hyperthyroid! Still no autoimmune markers (and all my vitamins et cet are fine), not clear to me that the GP is actually aware that you plausibly want to end up "hyperthyroid" by-the-numbers when treating hypothyroidism, but regardless I'm intending to go back in the new year and ask for (i) free T3 levels as well as free T4 and TSH, (ii) trying adding in straight-up T3 in case there's a conversion problem ongoing, and (iii) a referral to an endocrinologist because I'm really bored of this.

Books: I kinda sorta ended up, on Wednesday, going into Foyles and then Fopp with awesome ex-housemate-C, who was briefly around; in consequence I acquired a present for Adam, an unambiguously-for-grown-ups book by Shaun Tan (I slipped and fell, it was by the checkouts, I flipped through briefly and saw the giant snails and succumbed), some Actual Pink Floyd Of My Very Own (for the listening to on our backs in the dark at 1am, sorry neighbours), and another couple of Carrie Fisher's memoirs (they were two for a fiver, It Had To Be Done). And, er, then going into Waterstones unsupervised, where books were Buy One Get One Half Price, which meant that I acquired a copy of Why I'm No Longer Talking To White People About Race (having had the library ebook automagically evaporate from my device when I was 2/3rds through, due to disorganisation) and Mortal Engines (because I loved the film and wanted to know more about some of the worldbuilding and characterisation that were sketched for the cinema but were clearly explored in a great deal more detail in the source text).
kaberett: a dalek stands at the foot of a flight of stairs, thinking "fuck." (dalek)
At the beginning of July, I (very resentfully) joined a local gym.

Back in 2016, the UCH hypermobility clinic provided me with a series of group exercise sessions based around gym work and Pilates. Hydrotherapy was on offer, but as I didn't want to do it (because of how long it takes my hair to dry) and they didn't want me to do it (because I have not-asthma) I had no experience with that.

Turns out, contra every single previous physiotherapist I'd ever seen, that there are ways to make strengthening exercises helpful to me, as opposed to actively visibly harmful, and it involves dialling stuff way down past the point they gave of "... we can't really get any gentler", and also, it's nice that the exercises you're prescribing sort out 90% of people in six weeks but as it happens I'm a longer-term project than that.

(If I sound bitter, it's because none of these people, lovely though they were, actually picked up on the hypermobility, and none of them had any idea how to help me, despite their being trained professionals.)

Read more... )
kaberett: Trans symbol with Swiss Army knife tools at other positions around the central circle. (Default)
Read more... )

Bonus thyroid notes: staying on the current dosage despite the subclinical hyperthyroidism, rechecking bloods in ~2 months. (Which, conveniently, is the number of pills I've been given.)
kaberett: Trans symbol with Swiss Army knife tools at other positions around the central circle. (Default)
My bloods a few weeks ago had T4 at ~10% lower than the test in November, both right down at the bottom end of the "normal" range. A previous screen (~4 years ago) had much more middle-to-average numbers.

Given my cluster of autoimmune conditions, I'm going in for follow-up bloods to screen for thyroid antibodies on Tuesday. If they show up, we'll start treating me with thyroxine; if they don't, we'll keep monitoring. (I actually specifically asked if the thyroid antibodies screen was one it was worth doing, and my excellent GP's response was "good idea".)

This is me doing a relieved flump.
kaberett: Trans symbol with Swiss Army knife tools at other positions around the central circle. (Default)
I don't appear to have actually mentioned here that one of the reasons I've not been around much this autumn/winter is that as of about October I have been dealing with fatigue of the "sleep 16 hours a day" variety, which was diagnosed by local-GP as anaemia; I was given iron supplements and sent on my way, no further investigation required or so they said.

The iron helped quite a lot for a fortnight but I've just had another span of days where I just... need to sleep a lot. There's various other Health Misc going on that might be inflammatory/autoimmune-cluster nonsense or might just be coincidence, but given my family history of pernicious anaemia I... am going to get a second opinion from a different GP in a fortnight or so's time?

Like. Fundamentally that won't help much with the bit where most of why I've been writing more here over the past fortnight is I've been aggressively ignoring PhD writing, but it might help with some of the limited-energy-for-anything.
kaberett: Trans symbol with Swiss Army knife tools at other positions around the central circle. (Default)
Two major things: Yet More Lung Tests (I get to find out results on the 26th) and pain clinic psychologist assessment (physiotherapist will be happening tomorrow afternoon).

So far so good on the fluoxetine -- I'm not now getting BV every time I spend more than about two hours using a wheelchair (I am still managing to set it off occasionally, but by "occasionally" I mean "when spending all day travelling internationally after a solid preceding several days of Out And About In A Chair", which is consistent with other folk I know seeing slooow returns to baseline after discontinuing mirtazapine due to unacceptable side-effects). I'm still under-medicated (in that I'm irritable and weepy), so that's not brilliant, but I'm seeing my GP on Thursday, whereupon we will bump up the dose.

Read more... )
kaberett: Trans symbol with Swiss Army knife tools at other positions around the central circle. (Default)
I started a new antidepressant on Monday. Read more... )

I saw respiratory medicine a week ago, for my first appointment, and it was promising in several respects. Read more... )

Gynaecology: ultrasound results not yet with my GP. I'm going back in a month and we'll talk about them then, or if there's anything particularly exciting in them he'll give me a ring. (There won't be.)

Pain clinic information session: less dire than I expected. Individual assessment as to whether I'm a good candidate for the group course to follow sometime in September.

Physio: still making improvements, though I'm (as expected) really struggling to manage the amount of physio I'm supposed to be doing with actually going into work, i.e. I've become much more inconsistent about compliance, which is vicious-spiralling slightly because of the associated increase in difficulty of doing the things. Nonetheless, podiatry are expecting to discharge me at my next appointment in September because of how much I've improved with them, and I think that's the right decision; chasing up physio for the rest of me is on the todo list but just... hasn't happened yet.
kaberett: Trans symbol with Swiss Army knife tools at other positions around the central circle. (Default)
  1. Oral-B Pro-Expert Clean Mint toothpaste. Blue, sparkly, and cinnamon-flavoured. I don't understand why it's called Clean Mint. It contains, as best I can tell, no mint, apart from a slight cold sensation. The flavour compound is cinnamal. It is blue and sparkly and cinnamon.
  2. UltraDEX mouthwash (previously RetarDEX). Optional mint-flavoured sachet. Absent the optional mint-flavoured sachet, it tastes slightly of chlorine.

(I am Not A Fan of mint-flavoured things if they are anything other than field/garden mint, in which case I love them; peppermint and spearmint are Not My Friends because, approximately, they taste too loud, and given that I am utterly unwilling to floss because hands and only reliably brush my teeth twice a day if I'm living with someone who will coax me on the topic at bedtime because executive dysfunction and also hands, my dentist is much happier when I am using mouthwash. I am aware that other people feel similarly about mint, and a partially overlapping set of people are in a similar position with respect to this specific healthwork. Here are the things I use, people, and may they bring you if not actual joy then at least diminished resentfulness.)
kaberett: Trans symbol with Swiss Army knife tools at other positions around the central circle. (Default)
i.e. hello everyone, I am home again and have been for some time, [personal profile] shortcipher has taken excellent care of me, North Middlesex Hospital continues to exist in the centre of a desolate hellscape as far as public transport to anywhere useful is concerned, etc.

Slightly more detail. )
kaberett: Grinning emoticon. (:D)
OKAY SO I have a 20-minute appointment on the 29th with my GP. To discuss whether a PTSD diagnosis might be relevant for me.

Consequently I have promptly forgotten all of the reasons I think it might be relevant! Erm. Do you feel like crowdsourcing concrete examples of Me Doing An PTSD so that I don't have to think 'em up myself? Much obliged.

(Here is absolutely not the place to get into debates about the validity of self-diagnosis. Like, if you want to have this fight, I will win, but right now is not the time. Okay? Okay. Find me after.)


Dec. 25th, 2014 03:13 pm
kaberett: Photo of a cassowary with head tilted to one side (cassowary)
to the concept of taking my antibiotics four times a day at regularly spaced intervals on an empty stomach or at least an hour before food (all the rest of my meds need to be taken with food Or Else). Nope in general, but especially nope this week, just sayin'.

(It is a minor thing and I will get better!)
kaberett: Trans symbol with Swiss Army knife tools at other positions around the central circle. (Default)
  • Group Christmas dinner last night. Head of Group checked with staff whether it was okay to smoke inside the building. My coughing & throat were noticeably worse when he was more actively smoking the e-cig than when he wasn't (even when I had my back to him so had no idea what he was doing other than lung reaction). On the other hand, he noticed me looking twitchy so I've managed to discuss it a little... and awkwardly it turns out that he was already smoking less in meetings with me than with all his other students. Augh.
  • Lots of being-scared-of-things at the moment. Need to sort out what fears are which. The scared-I'm-crazy (wrt the smoke exposure thing) vs the scared-of-accidentally-dating vs just being so tired again. (Actually, I just need to write that post about last week's Elementary, I think, to discuss this more; right, that's why I wasn't going to do that here.)
  • Housemate is home. <3
  • Lunch with my mum in the NHM was nice (she was there for work and it's right next door, so).
  • I am having so many feelings about Stray Italian Greyhound (god I just want to lay down/these colors make my eyes hurt/this feeling calls for everything that I am/not//I’m not that kind/I’m so good at shooting down any notion/this tired world could change) and also a bunch more about Least Complicated (I'm just a mirror of a mirror of myself)
  • Everything hurts pretty consistently at the moment, for reasons I am not at all clear on, and I am just. so. tired.
  • Okay, I will get up the national rail website to prompt myself to sort out tickets to York for later this month, and then I will listen to Never Look Away again, and then I will head down to lab and do a five-minute job and then I will come back up here and try to get caught up with paperwork and then I will do another fifteen minutes in lab. Ugh. Everything is slow and difficult, and executive function isn't; SAD, I think.

Good news!

Nov. 13th, 2014 12:03 pm
kaberett: a patch of sunlight on the carpet, shaped like a slightly wonky heart (light hearted)
I have a significant vitD deficiency! (I'm at ~23 units, versus bottom of the normal range at 80 units). Ergo we're going to Make Supplementation Happen, and this will hopefully result in less fatigue and better-managed depression. 25 tablets a week for the next ten weeks, then retest and hopefully drop down to a more sensible prophylactic dose...
kaberett: a patch of sunlight on the carpet, shaped like a slightly wonky heart (light hearted)
0. PHILAE. xkcd on the topic is fantastic. As we approached landing o'clock, the rest of the kids in my pod gathered around the person with the most monitors (three goodness knows why) and we watched the live coverage en masse, on the grounds that anyone who didn't want to know about SPACE ROBOT LANDING should probably not be on an open-plan floor full of geology PhD students. I have done some small cries - my feelings about space robots are v similar to my feelings about life boats. Quoth my supervisor, on the topic of the live coverage, "This is like some messed-up space version of Eurovision - there's that lady who came on stage and was all 'and now, Germany...'". :D

1. We have changed ISP; the switchover will happen on the 24th, at which point I might have a more reliable internet connection at home (as of this morning still no connectivity, nor has there been for a week).

2. I am listening to Hymn of Acxiom on loop, partly because of something [personal profile] recessional said and partly Just Because; I am currently comparing-and-contrasting with Collecting You by the Indigo Girls.

3. Last night I made mattar paneer for the first time; some things I would change, but fundamentally a plausible thing (I was genuinely baffled by the oddly specific quantities in many recipes I found - 6-7 cashew nuts? really???) that I can make again in future.

4. Also pear-and-cinnamon-and-hazelnut brownie! Much as previously discussed, only this time I stuck in a good teaspoon of ground cinnamon, coarsely diced two slightly underripe pears to have small lumps, didn't add any extra sugar, and replaced 100g of the flour with roasted hazelnut meal. Friend-whose-face-I-get-to-put-my-face-on approved.

5. ... friend-whose-face-I-get-to-put-my-face-on. During yesterday's conversation I realised to my horror that in much the same sense that vocal conversations can suffer from miscommunications arising from ambiguous or incorrect bracketing, the ways I communicate involve meaningful whitespace. (This is clearly not unique to me, but I was briefly very distressed that spoken interactions involve meaningful whitespace, because it was the thing that scared me off python for years. :-p)

6. FWFIGTPMFO fixed the lights in the kitchen -- I had replacement bulbs, but I'd had about five people (including myself) look at the wretched light fittings and be completely baffled as to how to extricate them; this is something we have been trying and failing to fix since we moved in at the beginning of January.

7. [personal profile] sebastienne enthusiastically livetexting me reactions to Orphan Black and Elementary because I can't do my normal watch-along wossname over IM given hometernot <3

8. ahhhhhhhhhhh part one of pre-Ancillary-Justice short story available!!!

9. Some science progress today in lab! And uh mostly lab-progress because I've spent the rest of the day going AAAAAAAAAAAAH SPACE ROBOTS and grinning ridiculously (rather than making algebra bend to my will) BUT more of that will occur tomorrow... and in fact this evening if I want to hit milestone goals from supervisor >_>

10. Osteopath yesterday morning positive. She was competent at going "... you want to be seeing an NHS hypermobility clinic, not me" and is telling the GP who referred to me so; she agrees that I obviously have hypermobility syndrome; and is impressed by my feet + ankles being basically fine given what my knees and elbows and hips are like. Have been given some hypermobility-focussed physio (practising balancing on one leg; do for both sides, 3x45s per leg per day, shut eyes if I can manage it, one finger only on supportive surface for balance; if doesn't cause problems, move up to balancing on ball of foot instead of foot flat to ground).

Tomorrow I have follow-up on the depression-related bloods, and tomorrow evening I have counselling...


kaberett: Trans symbol with Swiss Army knife tools at other positions around the central circle. (Default)

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