kaberett: Trans symbol with Swiss Army knife tools at other positions around the central circle. (Default)
This is something that's difficult because I have several Really Pronounced food aversions while mid-migraine that run otherwise entirely counter to my tastes, such that when I'm not having a migraine it's hard to identify what food might be Appealing or Acceptable and when I do have a migraine I'm working with sufficient cognitive impairment that... it's also difficult!

Herewith some lists, for future reference.

Read more... )

(Annoyingly, I'm not actually managing to identify what the commonalities and distinctions are, which makes further extrapolation... challenging. Possibly tomorrow's plan is now to spend as much time as I can bring myself to looking through recipe books and seeing what doesn't seem like a terrible idea.)
kaberett: Trans symbol with Swiss Army knife tools at other positions around the central circle. (Default)
Right. So. This migraine.

It started on Wednesday. Read more... )

In summary: hopefully I now get another fortnight and change before the next round of this shit, so with a little bit of luck and a following wind I might even find it in me to talk about something that isn't Embodiment: The Terriblest Hobby. At least for a bit.
kaberett: Photo of a pile of old leather-bound books. (books)
I hit the point, a couple of weeks ago, of being sufficiently annoyed at having to flip back through all of my Physio Pages (and/or the not-at-this-point-actually-terribly-new Clue interface) that I... maybe slightly designed a two-page migraines-at-a-glance tracker to carry around in my notebook.

The aims were to:
  1. attempt to convince myself that I don't Imagine that Maybe I have photosensitivity on occasions that don't progress to Actually A Migraine;
  2. hopefully coax myself into taking triptans before onset of headache, as is current best practice regardless of what The Internet says (as confirmed by Monday's GP, who was great);
  3. optimise convenience of double-checking that migraine #2 really does occur 7-10 days after migraine #1 and I really can predict to at least that extent;
  4. for bonus points, have a quick overview of how much I'm actually napping (and how that relates to migraine patterns, if at all -- in part because napping is sometimes a prodrome symptom).

So I ended up with this: Read more... )
kaberett: A cartoon of wall art, featuring a banner reading "NO GLORY SAVE HONOR". (no glory save honour)
So the Entertaining thing is, I discovered while reading an article at the Migraine Trust my GP recommended, is that I am in fact on not one but two migraine preventative medications. continuously. and have been since about 2012.

Anyway! GP (phone) appt this afternoon. Read more... )
kaberett: Blue-and-red welly boots on muddy ground. (boots)
Second physio appointment today! And probably the last. Following on from the previous one, I did indeed have increased stability and reduced puffiness and pain; I've been given a few more progressions and told I should come back in the new year if it's still not feeling right, but otherwise they don't feel the need to make me any further appointments, and honestly I'm very happy with that.

Read more... )
kaberett: Clyde the tortoise from Elementary, crawling across a map, with a red tape cross on his back. (elementary-emergency-clyde)
I have agreement-in-principle to refer to an endocrinologist who will actually talk over all my symptoms with me, and also to keep taking a sensible dose of thyroxine in the meantime. Read more... )
kaberett: A drawing of a black woman holding her right hand, minus a ring finger, in front of her face. "Oh, that. I cut it  off." (molly - cut it off)
I started testosterone, as one pump per day of Tostran, on the first of June. Read more... )

Last year, at the beginning of July, post-top surgery, I got my act together to join my local gym and resume doing rehab physio per UCLH's instructions. I talked about this a bit last August, and it is actually useful for me to review Progress I Have Made, so I'm going to do that. Numbers below the cut (relating to resistance/reps/etc, no bodyweight). Read more... )
kaberett: Trans symbol with Swiss Army knife tools at other positions around the central circle. (Default)
In that the actual fracture clinic consultant glanced at it and went "yeah, that's broken", so it's just that the generalists in the minor injuries unit aren't used to being asked to deal with anything this, er, minor.

Which also means I need to go back in another three weeks' time (because MIU said "... go in to see the fracture clinic ASAP", and the fracture clinic went "... it's not been six weeks, we really don't care") for another X-ray to confirm that my foot still contains bones, at which point I am theoretically cleared for a full return to normal activity.

As it is I actually stopped wearing the boot a... week or so ago now? Because it was initially helpful, but it was throwing my hips and knees out badly enough that now that the pain's subsided to "maybe don't walk up stairs on the balls of your feet, Alex" it's not quite worth it.
kaberett: Photo of a pile of old leather-bound books. (books)
Paper: currently at the point where every time I think I can write a sentence, I end up disappearing into the rabbit-hole of double-checking references and re-wrangling data for an hour or two. This is A Good Thing, in that it means that I've got to grips with the job in question sufficient to see the small manageable chunks, rather than burying my head in the sand about it. Of course I've just run into a bit of a dead end, at least until I can get my supervisors' input (probably in the new Gregorian year), but happily there are many other paths for me to branch off down.

Relatedly: PhD2048 is dangerous. I'd successfully avoided all previous iterations of the game, which unfortunately meant I wasn't innoculated when this nonsense started doing the rounds.

Foot: bruise came up briefly! Swelling was temporarily visible! Now at the point where I can walk on it around the house a little provided I'm careful and don't push it beyond, ooh, the bedroom-bathroom-kitchen-sofa route before I have a rest. In turn this means I'm wearing the boot a little less (it has so much velcro), which means I'm crossing my legs by default, which means I'm putting weight through my foot awkwardly, which... means I'm wearing the boot more again! But so it goes.

Thyroid: I'm feeling hypothyroid-ish worse again but my numbers are now pushing toward hyperthyroid! Still no autoimmune markers (and all my vitamins et cet are fine), not clear to me that the GP is actually aware that you plausibly want to end up "hyperthyroid" by-the-numbers when treating hypothyroidism, but regardless I'm intending to go back in the new year and ask for (i) free T3 levels as well as free T4 and TSH, (ii) trying adding in straight-up T3 in case there's a conversion problem ongoing, and (iii) a referral to an endocrinologist because I'm really bored of this.

Books: I kinda sorta ended up, on Wednesday, going into Foyles and then Fopp with awesome ex-housemate-C, who was briefly around; in consequence I acquired a present for Adam, an unambiguously-for-grown-ups book by Shaun Tan (I slipped and fell, it was by the checkouts, I flipped through briefly and saw the giant snails and succumbed), some Actual Pink Floyd Of My Very Own (for the listening to on our backs in the dark at 1am, sorry neighbours), and another couple of Carrie Fisher's memoirs (they were two for a fiver, It Had To Be Done). And, er, then going into Waterstones unsupervised, where books were Buy One Get One Half Price, which meant that I acquired a copy of Why I'm No Longer Talking To White People About Race (having had the library ebook automagically evaporate from my device when I was 2/3rds through, due to disorganisation) and Mortal Engines (because I loved the film and wanted to know more about some of the worldbuilding and characterisation that were sketched for the cinema but were clearly explored in a great deal more detail in the source text).
kaberett: a dalek stands at the foot of a flight of stairs, thinking "fuck." (dalek)
At the beginning of July, I (very resentfully) joined a local gym.

Back in 2016, the UCH hypermobility clinic provided me with a series of group exercise sessions based around gym work and Pilates. Hydrotherapy was on offer, but as I didn't want to do it (because of how long it takes my hair to dry) and they didn't want me to do it (because I have not-asthma) I had no experience with that.

Turns out, contra every single previous physiotherapist I'd ever seen, that there are ways to make strengthening exercises helpful to me, as opposed to actively visibly harmful, and it involves dialling stuff way down past the point they gave of "... we can't really get any gentler", and also, it's nice that the exercises you're prescribing sort out 90% of people in six weeks but as it happens I'm a longer-term project than that.

(If I sound bitter, it's because none of these people, lovely though they were, actually picked up on the hypermobility, and none of them had any idea how to help me, despite their being trained professionals.)

Read more... )

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