kaberett: Trans symbol with Swiss Army knife tools at other positions around the central circle. (Default)

Some months earlier I had begun writing my second novel without a contract or an advance. I had assured my agent, Victoria Schuster, that I didn't need one and it would help keep away the pressure of a deadline.

"But that's the only way you write, Joe," she said. "You come over all Lapsed Catholic and guilty because you have signed the deal and that gives you the discipline to finish it."

"Well, yes, that was true in the past," I agreed. "But this time it will be different."

"A likely story," she said, accurately discounting any chance of seeing a manuscript within her lifetime. I vowed to prove her wrong and enthusiastically began tapping at my keyboard. I had completed 25,000 words, only to find that I had written myself into a cul-de-sac. There were only two characters in the novel and I discovered to my incredulous dismay that I had killed off both of them. This was a fairly major plotting error.

so he moved house about it.

kaberett: Trans symbol with Swiss Army knife tools at other positions around the central circle. (Default)

So [personal profile] rydra_wong does a pretty good line in dragging me into tiny non-fictional fandoms. Most recently I have tripped and fallen into reading about the Barkley Marathons.

Obviously, I decided the correct course of action would be reading The Book written about the first n years of their history. And there was a copy at Oxfam! cheaper than from eBay, even! Fantastic, thought I, and kept that tab open, and settled down to browse through ... all ... of the food-and-drink books. And to double check my To Acquire list. Because, you see, Oxfam has a flat postage fee for ordering any number of items from any number of individual shops (assuming you're not ordering anything they want couriered), so it makes sense to get Several Things. Totally.

Possibly it could have occurred to me that what with the Barkley Marathons being very much in the national news I might not be the only person who had had this thought, and nonetheless I was surprised when I went to check out and the book that had kicked this whole endeavour off... had been bought by someone else.

But, well, at that point I'd got a stack of six other books plus one CD for A, so...

(The books: Nature's Palette; Gaia's Garden (don't remember which of you I saw mention that but pretty sure it was one of you); something else by the author of the book on psychosomatic illnesses I mentioned yesterday and have subsequently finished, the penultimate chapter of which further complicated my feelings about... everything... so I'm now second-guessing this purchase in particular; The Beckoning Silence, by the Touching the Void dude, i.e. another special interest via rydra; Tamarind & Saffron, even though I haven't actually read my last charity shop cookbook yet, because I know what I like and I appear to be precisely its target audience; and Sally Rooney's Normal People, which I borrowed digitally from the library some time ago and have Many Feelings about and wanted to own a copy of.)

kaberett: Trans symbol with Swiss Army knife tools at other positions around the central circle. (Default)
As I mention, er, occasionally, I have fairly long hair that spends most of its time done up in a bog mummy braid.

This is great for most things -- gardening! cooking! cycling! washing up! -- but it turns out that it's not ideal for, specifically, Pilates, during the execution of which I want to be able to both lie on my back with my neck straight (rather than propped up on a substantial bun) and lie on my front while I wiggle my torso around, and spend time on my hands & knees, without my hair flapping around and annoying me.

Currently what I'm doing is braiding my hair as for bog mummy, spiralling and unspiralling (and arranging around me on the floor) as required for each exercise. I'm not holding out much hope that there are any better options (by which I think I basically mean "bog mummy, but on the top of my head not the back" or "shaped more like a bun that rests along my neck, but, like, without flopping from side to side when I'm not lying down")...

... but having described those hypotheticals I have at least one to try, heh, and if any of you immediately go "ooh, but how about--" then please do say!
kaberett: Blue-and-red welly boots on muddy ground. (boots)
I have been met with surprise from A and others recently, when pointing this out, so it gets to go here too:

In theory, when you are standing and indeed walking (or even cycling), you want your knees and your toes to be pointing in more or less the same direction, with your kneecap approximately in line with your second toe.

Doing this -- keeping your knee still, and rotating your foot around your ankle (yaw and roll are the relevant axes) -- activates the muscles of the arch of your foot, in ways that I at least find surprising and discombobulating, but which also make it actually possible for bits of my anatomy other than my joints to act as shock absorbers.

The thing with my particular flavour of bendy is, it's much less work to just let my toes drift outward and my arches flatten and my knees go back -- to let my joints take the strain, instead of activating my muscles and having them stabilise and shock-absorb and such. It's what I do automatically! It doesn't require me to pay attention! ... and it puts a lot more wear and stress on my joints and my muscles decondition and doing less work in the moment makes me hurt more over time.

So. Yes. Toes forward. Arch muscles engage. Isn't it weird.
kaberett: a watercolour painting of an oak leaf floating on calm water (leaf-on-water)
  • Gym; no numbers. )
  • Plotted a Thing. (A thing that graph, rather than any more elaborate kind of thing.) I'd been a bit scared of plotting it up because what if it made everything I'd done Wrong and what if [catastrophising], but in fact it didn't, it just neatly proved that (1) I had not, in fact, done Everything Wrong, and (2) there would be no meaningful point to including the bonus lines in the paper ANYWAY so I could comfortably go back to ignoring them.
  • Made Several phone calls; two to book a cinema ticket and one accidental redial, plus two to my bank to engage in Credit Card Wrangling. (Hopefully-good hopefully-positive credit card wrangling, just, also, Credit Card Wrangling. A held my hand.)
  • Took delivery of 51kg of fancy flour (set to become... about a hundred loaves of bread), about which I am Excited. (Need to finish the not-fancy flour first, but we're down to the Last Few Bags so it won't take too terribly long.)
  • Fennel mountain substantially reduced. I had come to the conclusion, you see, that Fennel Seeds Are Tasty, But Also Expensive; and that the fennel I was growing (Colossal, I think, but I can double-check) was also Very Tasty; and also that Thesis Fugue; and that, therefore, I was going to leave... some... of it to go to seed so I could harvest the seed. There... are a lot of seeds, and I harvested them in two batches, and the second batch is now dry and I am mooooost of the way through threshing it (by hand, as a stim), and once it's all done I'll weigh it up and tell you how much of it there is (less the bits I've already cooked with, very happily).
  • Dinner: bit vat of root-and-lentil soup, sourdough bread, pear crumble (with cardamom and cinnamon, and hazelnut in the crumb).
kaberett: A drawing of a black woman holding her right hand, minus a ring finger, in front of her face. "Oh, that. I cut it  off." (molly - cut it off)
I started testosterone, as one pump per day of Tostran, on the first of June. Read more... )

Last year, at the beginning of July, post-top surgery, I got my act together to join my local gym and resume doing rehab physio per UCLH's instructions. I talked about this a bit last August, and it is actually useful for me to review Progress I Have Made, so I'm going to do that. Numbers below the cut (relating to resistance/reps/etc, no bodyweight). Read more... )
kaberett: Toph making a rock angel (toph-rockangel)
greenhouse: gutted, flayed, dismembered! to my astonishment we... did not? break any glass? we bent a strut but that! appears to be all! we managed to unload the glass at the other end and it was all still in one piece??? HURRAH for toughened safety glass.

we did not erect it again at the allotment for A Variety Of Reasons, including (1) it was 6.30pm by the time we'd finished unloading and was Getting Dark, but more pertinently (2) there are gale-force winds predicted this week and I need to buy the necessary aluminium brackets (... and some quick-setting concrete...) to actually anchor it to the ground. (... also I need to level the ground a bit more and probably dig up the grape vine, BUT HEY.)

So my allotment is currently... mostly... covered... in dismembered greenhouse but IT'S OKAY I might make people take me to a garden centre tomorrow morning so I can spend the next week stubbornly constructing it solo.

And then I made A dinner, very gratefully, and disappeared off down the hill to listen to the concert I wasn't playing in. There was a new composition by Our Patron including A Paean To Voyager, and the second Mozart horn concerto played by a kiddo from the local borough music service, and the Beethoven Pastoral, and I enjoyed all of it and AS A BONUS my godmother + her children were present (in addition to her husband), so I got to very cheerfully greet all of them and chat a lot and also! my godmother! signed a bunch of paperwork for me! including witnessing me finalising the application paperwork for SMI and also MY IRISH PASSPORT APPLICATION. FINALLY.

SMI paperwork is in the post; passport application I'm gonna finalise tomorrow and then take into the post office on Monday. It is good to feel in motion.
kaberett: a dalek stands at the foot of a flight of stairs, thinking "fuck." (dalek)
At the beginning of July, I (very resentfully) joined a local gym.

Back in 2016, the UCH hypermobility clinic provided me with a series of group exercise sessions based around gym work and Pilates. Hydrotherapy was on offer, but as I didn't want to do it (because of how long it takes my hair to dry) and they didn't want me to do it (because I have not-asthma) I had no experience with that.

Turns out, contra every single previous physiotherapist I'd ever seen, that there are ways to make strengthening exercises helpful to me, as opposed to actively visibly harmful, and it involves dialling stuff way down past the point they gave of "... we can't really get any gentler", and also, it's nice that the exercises you're prescribing sort out 90% of people in six weeks but as it happens I'm a longer-term project than that.

(If I sound bitter, it's because none of these people, lovely though they were, actually picked up on the hypermobility, and none of them had any idea how to help me, despite their being trained professionals.)

Read more... )
kaberett: a patch of sunlight on the carpet, shaped like a slightly wonky heart (light hearted)
A model of social interaction I am chewing over: the trade-off between the background assumption that "well, you're a right-thinking person and we agree on a lot so clearly you'll want what I want" and explicitly-negotiated compromise.

Humans are good at pattern-matching, and we're social animals, and we're prone to forming in-groups based on shared characteristics, and it is actually useful to be able to shorthand shared desire (from "pizza for dinner" to "political whatever", because I am very aware that social situations where "I'd rather not have pizza for dinner" cause major friction and insult are not Unheard Of).

It occurs to me, then, that a lot of the ways in which social interactions have blown up in my face might be usefully modelled as a mismatch of expectations as to how the balance gets struck.

From my perspective, I have a long-term relationship with someone wherein for some time it is the case that I am happy to compromise toward prioritising their needs, because I think that position of compromise costs me-and-therefore-us less than it would cost them; I tend toward the background assumption that when that shifts, when that compromise would cost me, when I end up needing something, they'll be similarly willing to accommodate me.

From their perspective, it seems probable that I've spent a long time being right-thinking and in-group and having wants that align with theirs, and when that's abruptly and inexplicably no longer the case I get shifted to out-group, or to unpredictable threat -- and that's not helped by my utter bafflement and own threat-response at how badly they're reacting to me wanting something that's in conflict with their desires.

Negotiation versus alignment, versus mirroring.

There's a framing in which this is "allistics are sometimes weirdly bad at recognising that not everyone they consider a good person wants what they want all the time in all circumstances"; in which recognising that fallacy and actively and explicitly negotiating instead is a skillset I've learned through negotiating with myself, my own present-versus-future wants, the way BPD affects my timescales of desire and means that it is painfully obviously in my best interests (and the best interests of those around me) for me to examine what I think I want, and why, and make sure I'm comfortable I'm making ethical choices in seeking comfort.

There's another framing -- and please admire the fact that I pay a trained professional £40/hour to access these insights, and that's very much sliding-scale rates -- in which, just maybe, how much space I make for people to want things that aren't what I want... is related to my incredible resistance to the idea, my reluctance to believe, that actually, sometimes, other people's desires do align with mine, even if I express mine first, and that doesn't mean that other-desire is coerced or insincere.

Miscellany

Jun. 5th, 2018 10:38 am
kaberett: Trans symbol with Swiss Army knife tools at other positions around the central circle. (Default)
1. Singular they is well-attested, as we know, but I find myself wondering whether the appearance of they with the singular verb form in modern low-prestige grammars ("they was doing...") is part of what drives the prescriptivist sneering, consciously or otherwise.

2. I sincerely hope that today's Strong Female Protagonist is going to get narratively called out for the bullshit it is. I do pretty much trust the creators so my hopes are high, but I am bracing.

3. Body positivity: I keep on being frustrated by mainstream presentation & understanding of it as "ISN'T YOUR BODY GREAT DON'T YOU LOVE IT :D" where "love" means "have unambiguously solely positive feelings about", and I keep wanting to wade in to conversations about same with "okay but this is a ~MISCONCEPTION~ it's actually about COMPASSION and KINDNESS and UNDERSTANDING THAT IT'S DOING ITS BEST and d'you know what all the studies show this actually really helps" but I recognise that wouldn't actually be useful, so, you know, you all get a grumble here instead.

4. How To Tell If You "Need" A Mobility Aid: if, in spite of all the structural and systemic and social barriers, using one (part-time! full-time! whatever!) makes your life easier and more pleasant, you need it. That's genuinely it.

5. I swung by the local cheap gym the other day to scope out their level access or absence thereof; as I was giving up, the person at reception who'd seen me wander past and then back out came out and asked if they could help me. Oh yeah, they said, we can do that, let me just come and open the side door -- obviously we'd need to get a ramp but this is how you'd get in. And, you know, I can't get into reception with level access, but the way it's set up I'd be passing reception at eye-height with whoever's on front desk so could get their attention pretty easily. Anyway, I then e-mailed to say "recently post-op, would like to join up with my partner once I'm cleared to return to exercise BUT I'd need level access as discussed last week, here's some eBay links to examples of the types of ramp you could get"... and a few days later got the response "we've just placed the order, should be arriving in the next few days, please sign up whenever!" So that was vastly easier and more positive than I expected.

6. I appear to want to do more reading about thinking about anger, as an emotion, as it's experienced in my social context and consensus reality. For me it's basically always an expression of being scared, and if I can work out why it usually redirects into a different emotional experience; I'm curious about how other people experience it, so here's a placeholder note about that.
kaberett: Trans symbol with Swiss Army knife tools at other positions around the central circle. (Default)
[Content notes: living with trauma, basically]

A thread that keeps coming up in speculative fiction I'm reading at the moment (which is probably more indicative of what I'm seeking out than any publishing trends?) is the necessity for artificial intelligences to have emotions, in order to facilitate making arbitrary choices (the Imperial Radch; the Wayfarers; ...). Logic alone isn't adequate for a complex responsive intelligence: they'd stall out agonising over minutiae.

I've also been having a fair few (they say, wryly) conversations around emotional reactions and responses to contexts and events. I've known for a long time that going "okay, but that's not what's going on, here's a coherent model for my actions and behaviour and motivations that demonstrates that the thing you're scared of isn't actually happening" doesn't actually seem to have as much effect on most people's decision-making and behaviour as I'd (naively) expect. And then yesterday my interlocutor said: doesn't impact how I feel about the thing ;-) just what I logically conclude

... and -- oh. oh. Between the BPD or c-PTSD or whatever and the depression, I've in fact had to spend a lot of time working on... precisely that, right? I have to spend a lot of time and energy directing myself away from reacting based on compelling emotional "truths" and toward responding based on logical frameworks. I don't have to act as though people I'm close to want me to vanish absolutely from their lives unless they directly tell me that in fact they have changed their mind and they do*. For me, having a logical framework that contradicts my emotional understanding of the world doesn't stop me having feelings. It just -- informs what I do with them? I can free up a lot of processing power because I stop "having to" worry about how accurate they are, how much I should be taking them into account, whether I should be acting based on them. The solution to the feelings then becomes self-validation ("wow yep feeling like this is pretty rubbish, have some hot chocolate and do some stretches"), rather than their being an additional constraint I have to try to solve for, that's usually mutually exclusive with what other people are actually telling me they want.

"This information changes what I logically conclude about the situation" seems to be pretty powerful for me in a way that, as far as I can tell, it perhaps isn't for many folk? And I'm just... amused by having fitted together a model for why "no, that's not what's happening" doesn't do what I expect, that is superficially such a contradiction to the fiction.

I think it isn't, of course: this is how emotion interacts with making big decisions, not trivial ones. I'm simultaneously (still) exploring the potential of having unjustified or arbitrary preferences, particularly in the context of modern art. Just: goodness, but the inherently contradictory nature of existing. Think, two things on their own and both at once.

* Yes, we're aware that puts them in potentially awkward positions, but we've negotiated this very carefully in specific instances where I get the strongest compulsions to Just Vanish.
kaberett: Photo of a pile of old leather-bound books. (books)
Words are the piecemeal sacrifice I make
upon the altar of humanity:
I'm half-convinced that if I merely take
sufficient care in choosing them, there'll be
some minor miracle. I'll burst awake
from dreaming myself lost and, lossless, free.
This could be all. What else is there to say?
Well, everything, of course -- unless I mean
to halt. A truth: I've learned the only way
to changelessness is death; to be unseen,
ignored, unmade. Fear craves silent decay
of self. Of hope. Of all we might have been.
So we'll know loneliness; we will know grief.
Now: here begins the hard work of belief.
kaberett: photograph of the Moon taken from the northern hemisphere by GH Revera (moon)
so I was talking to the boything the other day about how I am very definite that I want who only by moving can balance/only by balancing move as soon as I work out who to commission to do the lettering for me, and I'm very certain I want it on my bicep, and he was being a bit baffled about this until I explained that the reason to have it on my arm is wheelchair user. (And also erstwhile pianist/harpsichordist, but hey.)

Which got him to talking about wheels as symbology. And, whoops, now I apparently want the outline of a circle (medium-thick, dark ink; cannot decide just yet whether black or v dark blue) about the size of a 2p piece, on my spine just below the nape of my neck/shoulders. Because: wheels and movement and the Moon and choices and decision-making and going in circles (every five years or so/I look back on my life/and I have a good laugh) and a reminder to not try carrying the world on my shoulders.

This is sufficiently straightforward that I might in fact get it for my birthday (in that I don't have to worry about lettering etc). Because it is a thing that Feels Right, and is absolutely a thing about which I'll keep inventing more symbology as I go along.

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kaberett: Trans symbol with Swiss Army knife tools at other positions around the central circle. (Default)
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