kaberett: Clyde the tortoise from Elementary, crawling across a map, with a red tape cross on his back. (elementary-emergency-clyde)
I have been meaning to write this up for a while and have just had cause to do so elsenet; ergo, have a copy of Alex's Algorithm For Choosing A New GP. It has served me pretty well thus far.

Comments and additions welcome, as ever. :-)

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Uuuupdates

Jun. 20th, 2017 07:35 pm
kaberett: Overlaid Mars & Venus symbols, with Swiss Army knife tools at other positions around the central circle. (Default)
(1) I am a bit groggy and out of it post Minor Medical Procedure for Mystery Menstrual Symptoms; A was v good about shunting me around the hospital when I was too sore to particularly want to push myself/bringing me things/etc. Everything looked healthy; I was a Model Patient; biopsy results are unlikely to show anything concerning, so ??????????

(2) House viewing this morning was VERY CONFUSING. It has a garden! That contains a well-tended hydrangea, and rose bushes, and fruiting apple and plum and probably-cherry (there's definitely a cherry, I'm just not sure whether it's ornamental), and maybe a crabapple, and a vegetable patch, and a patio. And a nice kitchen. And the conservatory would be dining room/games room/music room and would be lovely esp. in the rain. So now I'm just trying to convince us (... myself) that we'd actually be able to fit the furniture into it, which is currently proving Difficult; I am intending to ask to have another viewing and actually take a tape measure this time. (Wider wheelchair just about fits in the front door. It's rampable. I should be able to get a powerchair in. There's an airing cupboard for letting dough rise in. Etc etc etc...)
kaberett: Overlaid Mars & Venus symbols, with Swiss Army knife tools at other positions around the central circle. (Default)
Two major things: Yet More Lung Tests (I get to find out results on the 26th) and pain clinic psychologist assessment (physiotherapist will be happening tomorrow afternoon).

So far so good on the fluoxetine -- I'm not now getting BV every time I spend more than about two hours using a wheelchair (I am still managing to set it off occasionally, but by "occasionally" I mean "when spending all day travelling internationally after a solid preceding several days of Out And About In A Chair", which is consistent with other folk I know seeing slooow returns to baseline after discontinuing mirtazapine due to unacceptable side-effects). I'm still under-medicated (in that I'm irritable and weepy), so that's not brilliant, but I'm seeing my GP on Thursday, whereupon we will bump up the dose.

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kaberett: Overlaid Mars & Venus symbols, with Swiss Army knife tools at other positions around the central circle. (Default)
Tomorrow lunchtime (I know this is late notice sorryyyyy if it helps any I haven't really done my other prep yet either) I have the opportunity to provide a high-profile medical school with advice on how to make their OBS&GYNAE teaching more inclusive of and welcoming to trans patients.

I think I've got the factory-default uterus setup pretty well covered, but I want to make sure that I am representing (as best I can) trans people who *don't* have that set of factory-default anatomy, and their/your concerns about accessing gynaecological health care.

If you would be willing to drop me a line about your thoughts, in comments here or in private message or in e-mail, I would be super grateful. <3
kaberett: Sketch of a "colourless, hamsterish"  animal having a paddy. (anxiety creature)
... the time from waking up to the first hate speech directed at me by a Leave voter was three hours.

She was an NHS employee providing me with necessary medical care.

She told me that Leave was a good result for the NHS -- because it can't cope with all the people who don't work, don't contribute, demand scans and MRIs, expect free prescriptions, even expect free paracetamol rather than buying it themselves.

She was cutting a dressing off my hand.

She asked me what I thought.

I thought: every single one of those things you listed describes me. I thought: I have just been told by a medical professional that I don't deserve care. I thought: there is no way I'm telling you you just described me. I thought: I'm terrified.

I'm white. I'm third generation. English isn't my first language but people can't tell unless I tell them and I certainly *sound* posh. I don't look Jewish until you put me in a room with the rest of that side of my family. I can, if necessary, leave the house without a wheelchair.

I pass. This is what I got while passing. I am terrified for the people who can't.
kaberett: Overlaid Mars & Venus symbols, with Swiss Army knife tools at other positions around the central circle. (Default)
(content note for mention of misgendering with a happy ending!)

Popped in today to talk about additional paperwork for academia purposes. He's perfectly cheerful about writing a letter to the effect that I'm well enough to resume studies, but the amount of physio/medical appointments/etc I have to do isn't compatible with working full-time.

We also got chatting about sports wheelchairs and The New Chair (I've just booked train tickets to go and pick it up and I am so excited) -- I get the impression he's a cyclist, and therefore goes oooOOOOOooh when you point out you've got Spinergy wheels on, and that wheelchair wheels are basically the same thing as high-end bike wheels.

And while he was distracted by all that, he referred to me using an inappropriately gendered pronoun in the notes he was making, caught himself, apologised appropriately, and rephrased entirely without input from me.

I genuinely hadn't even noticed that he'd spent the past however-long-it's-been carefully making sure that he doesn't misgender me in my medical records.

I am doing a small good cry about it, okay.
kaberett: Overlaid Mars & Venus symbols, with Swiss Army knife tools at other positions around the central circle. (Default)
Like: guidelines on when it's appropriate to touch a chair; guidelines on asking if help's wanted; guidelines on talking to someone using a chair (and therefore not at standing height) -- with the understanding that people vary. (Largely because I have come up with a rule-of-thumb about touching chairs that I am failing to phrase as a standalone post, so.)

Interested? Got things you'd like addressed?
kaberett: Overlaid Mars & Venus symbols, with Swiss Army knife tools at other positions around the central circle. (Default)
Anyone interested in doing Kew the Movies with me? I've booked tickets for myself and a friend for the Star Wars showing already, but I'm happy to have others join us and I am 100% up for seeing any of the other showings (Jurassic Park, Mean Girls, and Labyrinth). I am similarly up for potluck picnic dinners.

On the heartbreaking difficulty of getting rid of books:
After all, the romance of minimalism relies on invisible abundance. The elegantly empty apartment speaks not to genteel poverty, but to the kind of hoarded wealth that makes anything and everything replaceable and available at the click of a mouse. Things and the freedom from things, and then things again if you desire. If you miss a book after getting rid of it, Kondo consoles, you can always buy it again. Dispose and replace, repeat and repeat.


What should student doctors learn about sexual healthcare? This survey is being run by the University of Oxford:
We are redesigning courses for medical students to teach them what they need to know about sexual and genital health. If you have experience of going to the doctor for these issues, including asking about contraception, sexually transmitted diseases, screening, or any concerns about your genital or sexual health, we would like to hear from you.


I am spending a lot of time at the moment watching two eaglets grow up.
kaberett: A drawing of a black woman holding her right hand, minus a ring finger, in front of her face. "Oh, that. I cut it  off." (molly - cut it off)
A couple of days ago I managed to mess up my morning routine sufficient that I didn't get as far as putting ring splints on 12.30ish, and oh but did my hands hurt.

I'm pretty sure that the hand therapist's attitude would be that I'm wearing them all the time, so of course my hands are getting weaker, so of course they hurt -- except: my hands are demonstrably getting stronger (I'm doing hand physio pretty much every day; I've just moved up to the third and last block of memory foam, which has the most resistance), and it's not the kind of pain that comes with muscle work or fatigue.

Which leaves me at: wow, did my hands just... hurt that much... all the time... and I thought it was normal...? And the conclusion: yeah, probably, that'd be why I started out wearing the splints experimentally and then just kept wearing them despite the fact that they chewed through wheelchair gloves, gave me a bunch of new callouses, did not (in the first instance) fit me terribly well, and were an all-round faff.

So! Yes! If you are bendy, and your hands routinely hurt, and you're sort of dubious about the point of ring splints: yes they're amazing, and please by all means do if we have even vaguely similarly-sized hands ask to try mine on if we're in the same place. Because, to reiterate: I can use chopsticks. I can use chopsticks more than once a week. I can type, and I can make pastry, and I can brush my hair, and my hands just hurt less. They're actually magic.
kaberett: Overlaid Mars & Venus symbols, with Swiss Army knife tools at other positions around the central circle. (Default)
On Friday afternoon I attended an introductory information session being run by the hypermobility clinic. This was useful in several respects (the factoid that the average bendy person needs to be twice as strong as the average non-bendy person to compensate for joint laxity; the articulation that part of the problem is that bendy folk tend to do everything at much greater extension than non-bendy people, meaning we make isolated joints do all the work that non-bendies use entire systems to carry out; the introduction to the set of services other than individual physiotherapy that are available via the clinic), but it also managed to hit a lot of my buttons about how discussion of chronic pain gets framed in the NHS and in the medical world more generally.

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Resources recommended during the session )
kaberett: A drawing of a black woman holding her right hand, minus a ring finger, in front of her face. "Oh, that. I cut it  off." (molly - cut it off)
(I am kind of baffled by how smoothly and rapidly this is all going: I was initially supposed to have my first appointment on the 8th of March, but due to a steady stream of late cancellations I've thus far had an initial assessment and one session of hand therapy, and will be having at least one more session of hand therapy and an information/education session before my the theoretical date of my first appointment ever rolls around.)

Initial assessment. )

Hand therapy. )

Summary. Yeah, I just... yeah. This can stay.
kaberett: A green origami stegosaurus (origami stegosaurus)
Caffeine: still, as it turns out, a bad idea. Probably. (Semi-accidentally had caffeine yesterday evening; was up ridiculously late in quiet tears about largely-disconnected-from-reality anxieties.)

I have just received an unambiguously helpful response from the Yellow Card folk, on two counts: first, they've added Mx as a title and updated my report to use it; and second, they've asked me for some more details and have passed on my specific query ("can you look into whether this side effect is associated with weird lung shit to do with connective tissue disorders as well as COPD, because that was an unpleasant surprise") to the scientific assessment team, who will apparently be getting in touch with me sometime in the next fortnight. So: huh.

Rivers of London: really enjoyed book one, was seriously hacked off with the gratuitous cissexism in book two, am still mildly grumpy halfway through book three -- but I am still reading, so.

Here is an essay: On Conflicting Emotional Needs In Relationships.

Here is a recipe I haven't yet tried: mulled wine plum crumble.
kaberett: Clyde the tortoise from Elementary, crawling across a map, with a red tape cross on his back. (elementary-emergency-clyde)
Basically, it is just such an enormous relief that I have a GP this willing to work with me.

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kaberett: A drawing of a black woman holding her right hand, minus a ring finger, in front of her face. "Oh, that. I cut it  off." (molly - cut it off)
(Turns out I have at least some friends who haven't heard this particular rant of mine before, and I can't face wading through tags to see if I've had it properly already, so! Here we are. Content notes for everything you'd expect in terms of abuse, medical neglect, medical incompetence, terminal illness, etc.)

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kaberett: A drawing of a black woman holding her right hand, minus a ring finger, in front of her face. "Oh, that. I cut it  off." (molly - cut it off)
Counsellor yesterday asked if next week's session could be a little later than usual, at 2 instead of noon, and I said sure and then belatedly realised that I was due to see my GP at 2.20, and then at 1am I was very good and logged into the online system and discovered that his only other appointment between now and when he goes on holiday was 11.20 today, so I booked that. (A moment of amusement: I went to see David at the local IAPT place yesterday, rather than at my GP surgery where he works one day a week. When he's there he's in rather more of a managerial role, and, well, that is the first time I've ever seen him wearing a three-piece suit, let us put it that way. The instant we got into the room for therapy he took off the jacket and rolled his shirtsleeves up...)

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