List for GP

[kaberett]

• lungs
  
• DWP letter: more detail on physical + mental health (maybe actually tell them about the bit where one of my legs occasionally decides it's not going to be load-bearing?)
  
• physio who knows anything about hypermobility
  
• temazepam

Comments

[azurelunatic]

Blood pressure monitoring?

[sfred]

I had a really good hypermobility physio - let me know if you'd like details.

[kaberett]

YES. Thank you.

[kaberett]

Oooh, yes please.

[sfred]

I got my GP to refer me to the hypermobility clinic at UCLH, who then referred me to their physio department, where there's no limit to the number of sessions. That sounds like more faff than it felt like.

[pretty_panther]

I would super encourage you to talk about that leg.

Are you hoping more weight and letters from your doc may help you appeal the dwp decision?

bodies how do they even work < fabulous tag and excellent question.

[kaberett]

Trouble is the leg's a known issue - it's endometriosis-related nerve pain, so. ~Not much they can do.

[jesse_the_k]

Yipes. I knew endo could be all-consuming like a virus but that's extreme.

[kaberett]

Thank you! Helpful.

[kaberett]

Hah. I know people who actually get intermittent numbness/non-responsiveness, not just shooting pains from hip to ankle that make load-bearing hard! Coz obviously as an abdominal thing it's got access to all the nerves coming out of the spine to do legstuff...

[(Anonymous)]

There is a physio in London called Rosemary Kerr - she wrote the book on hypermobility for physiotherapists. I'm not sure if she does any NHS work and if she does she's probably part of the above clinic. I saw her for one (or two? my memory fails me) visits privately and it was well worth it, even though that meant travelling from Cambridge and organising childcare for that time.