kaberett: Trans symbol with Swiss Army knife tools at other positions around the central circle. (Default)
[personal profile] kaberett
It occurred to me, this afternoon, as I was grousing about my Ongoing Situation, that I could -- at least in principle -- phone The Migraine Trust's helpline for further calibration on how assertively I should be hassling my GP etc.

I am currently six or so hours into what is very likely to be a 36-or-so-hours-maximum of respite from migraine, so that's a job for tomorrow morning.

In the meantime, I am... increasingly unconvinced by the propanolol (and for that matter the frovatriptan, which I grudgingly tried again at the suggestion of the neurologist, who thought It Might Work Better Alongside A Beta-Blocker). It continues to make no discernible difference to the migraines, and also it... is absolutely unambiguously exacerbating my Raynaud's! Please find attached a picture of my foot, taken in a room with an air temperature of 22°C. It is not a colour that my foot is supposed to be, and also capillary refill was taking, like, 10-15 seconds. I am at one third of the maximum dose of propanolol! I do not think I want to increase my dosage of this drug any further.

a right foot, from below. the left side of the sole is pink; the right side and four of the toes are markedly blue-purple.

(I am very tired.)

(no subject)

Date: 2021-11-12 07:00 am (UTC)
cesy: "Cesy" - An old-fashioned quill and ink (Default)
From: [personal profile] cesy

Ouch, yeah

(no subject)

Date: 2021-11-12 08:13 am (UTC)
fyreharper: (Default)
From: [personal profile] fyreharper
Roomie has just finished coming off (fairly low dosage of) propranolol, after about a year on it. It did not help her migraines either.

…I’m sure it helps for *someone*, but…

(no subject)

Date: 2021-11-12 10:47 am (UTC)
lunabee34: (Default)
From: [personal profile] lunabee34
That is not a happy foot. :(

(no subject)

Date: 2021-11-12 11:40 am (UTC)
chiasmata: (Default)
From: [personal profile] chiasmata
This is all so rubbish; I’m sorry.

(no subject)

Date: 2021-11-12 12:39 pm (UTC)
vass: Small turtle with green leaf in its mouth (Default)
From: [personal profile] vass
Definitely an Incorrect Foot Colour. It's hard to imagine that that would be good for your brain.

(no subject)

Date: 2021-11-14 01:57 am (UTC)
shanaqui: Ray Kowalski and Ray Vecchio from Due South. Text: swinging both Rays. ((RayRay) Swinging both)
From: [personal profile] shanaqui

I... was very much under the impression that propranolol is specifically contraindicated for people with Raynaud's, actually, so now that you mention having Raynaud's I am... surprised that they gave it to you at all, given the risks there. 👀

(no subject)

Date: 2021-11-14 07:17 pm (UTC)
davidgillon: A pair of crutches, hanging from coat hooks, reflected in a mirror (Default)
From: [personal profile] davidgillon
Grey is never a good look on a people!

ISTR it was propanolol that basically stopped my mother's weekly migraines dead when she finally got it prescribed, but it's clearly not one that works for Kaberetts.

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kaberett: Trans symbol with Swiss Army knife tools at other positions around the central circle. (Default)
kaberett

March 2026

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