I knew I had EDS/HMS for at least 20 years before I could get anyone to do anything for me that wasn't an NSAID (very useful for those aches and pains that are NOT about inflammation!). Oddity in my case was that it was a pulmonologist who finally agreed with me because "people with ordinary [connective] tissues don't present like the asthma with which you are presenting". Took the rheumi about five more years to get on board enough to sign disability paperwork.
I keep hoping the medical community will stop being stupid, but I doubt my hopes will ever be realized.
(Also? Don't get me started on ovary issues or we're likely to be here all fucking day long.)
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regna
(no subject)
Date: 2015-08-25 07:07 pm (UTC)I keep hoping the medical community will stop being stupid, but I doubt my hopes will ever be realized.
(Also? Don't get me started on ovary issues or we're likely to be here all fucking day long.)
ETA: to fix stupid typo