kaberett | [migraine] notes on a conversation with The Migraine Trust

tl;dr: sucks to be me!

do check in with GP explicitly about whether I've been referred to a general neurology dept or a specialist headache clinic
Guys' & St Thomas' and KCL are also good bets
it might be worth contacting the hospital I've been referred to directly to make it clear I can come in at short notice if there are cancellations
my GP probably can actually usefully be induced to prescribe me supplements, given that the other treatments we've tried haven't worked
I did not get a clear statement on the evidence base for "even if the preventatives have absolutely no effect at all whatsoever you've got to try them for at least 8 weeks and preferably 12"
I did get a statement both that oestrogen gels/patches are probably safe for migraine with aura (...) and that they're not relevant to me anyway (because of cycle length variation)
also worth asking GP about non-oral delivery routes for triptans, though I am not holding my breath about those working either
I can take triptans up to 10 days/month and other analgesia up to 15 days/month, which nominally gets me 25 days/month when I can use acute treatments, which I would consider more useful if triptans actually worked (: but yeah no even if I'm taking the painkillers for non-headache pain, lol, gotta stick to fewer than 15 days per month
waiting times are indeed just shit

Which does at least give me a bunch of stuff to fill out yet another eConsult with next week, once I've spent my weekend having my second round of migraine for this week.