batdina: lightning strike (bad weather)
orasimcha batdina ([personal profile] batdina) wrote in [personal profile] kaberett 2015-08-25 09:09 pm (UTC)

ok. you can read NIH (US) stuff here: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1994284/ and I have some other stuff I'm happy to send you once I find it on this mess of a hard drive.

the long and short for me: I had more lung capacity than anyone with regular asthma should have, with matching SHITE airways. I had both extrinsic and INtrinsic triggered asthma issues, and possibly unrelated but maybe good to know anyway: my lungs overproduced IgE so much so that ordinary delivery systems of relief couldn't penetrate into the air-sacs (this included antibiotics when I had pneumonia. that was fun -- not).

[aside on protocol that works for me: I ended up on xolair, which works well enough that I can even sometimes go outside without a mask and have done some long distance travel as well, neither of which things I could do for almost 5 full years prior to starting the xolair. I also went from needing prednisone regularly each day to having an emergency stash at home, but not using it unless a neb can't help me.]

I'm sure there was more; if I think of it I'll pass it along.

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