kaberett: Clyde the tortoise from Elementary, crawling across a map, with a red tape cross on his back. (elementary-emergency-clyde)
I have been meaning to write this up for a while and have just had cause to do so elsenet; ergo, have a copy of Alex's Algorithm For Choosing A New GP. It has served me pretty well thus far.

Comments and additions welcome, as ever. :-)

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kaberett: Overlaid Mars & Venus symbols, with Swiss Army knife tools at other positions around the central circle. (Default)
(Motivated by the fact I've had this conversation with several people in the last few months.)

That's a slight overstatement, but honestly not much of one: periods shouldn't hurt so much that they impair your normal function. The idea that "everyone gets cramps", or that you're making it up, or simply not tough enough, is toxic nonsense.

Endometriosis is reckoned to affect approximately 10-15% of people who menstruate. It's pretty much the most common cause for painful periods, it's way under-diagnosed, and last I checked the diagnostic delay in the UK (between when you first tell a healthcare provider about symptoms and when you actually get the diagnosis) is about ten years.

So: hurting so much it impairs your function is really not normal. Under the cut is a discussion of a bunch of other stuff that isn't normal and might be indicative of endometriosis, and some suggestions about how to approach medical professionals on the topic.

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Here, for reference, are the NICE recommendations relating to endometriosis.
kaberett: Overlaid Mars & Venus symbols, with Swiss Army knife tools at other positions around the central circle. (Default)
The proximate impetus to write this is that I'm trying to get back into the swing of technical, information-dense long-form writing. The motivation with respect to content, however, is that there's a whole lot of information about all this stuff and I found it utterly overwhelming when I was first seriously looking at mobility aids, especially in a cultural context that is hellbent on insisting that it's far more important that we look "normal" than that we be comfortable or capable. Form over function, as applied to people, is something that makes me particularly cross. Ergo.

The focus of this guide is manual wheelchairs for everyday active independent use by people who can stand and walk to some extent.

Contents


  • Orientation

    • Price points
    • There are lots of correct choices

  • Decisions

    • Materials
    • Frame
    • Footplates
    • Wheels
    • Seating
    • Additional features

  • Process

    • Measurements
    • Acquisition

  • Recommendations

    • Accessories
    • Aspirational


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kaberett: A drawing of a black woman holding her right hand, minus a ring finger, in front of her face. "Oh, that. I cut it  off." (molly - cut it off)
(Turns out I have at least some friends who haven't heard this particular rant of mine before, and I can't face wading through tags to see if I've had it properly already, so! Here we are. Content notes for everything you'd expect in terms of abuse, medical neglect, medical incompetence, terminal illness, etc.)

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kaberett: Overlaid Mars & Venus symbols, with Swiss Army knife tools at other positions around the central circle. (Default)
(Cis friends, by all means ask me questions to clarify, but maybe consider sitting out of actually having an opinion in comments on this one. Anon comments are permitted but will be screened; I expect to unscreen unless otherwise requested.)

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kaberett: a patch of sunlight on the carpet, shaped like a slightly wonky heart (light hearted)
If I offer to accompany you to an appointment, or to act as a medical advocate for you, what I am offering is anything you like from the menu below, plus probably some other stuff I haven't thought of. I am not trained; I've just spent a lot of time around the NHS and private healthcare, one way or another. As far as I'm concerned, these are some of the things that medical advocacy can look like - and wanting one doesn't mean you want any of the others.
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This list probably isn't exhaustive, but everything on it is included in any offer I make to act as a medical advocate for you. Obviously negotiation is needed - and more negotiation is needed the more involved you want me to be. For example, if you want me to speak on your behalf that is fine, but I will need an extremely thorough briefing on what to say, and will want to negotiate ways to check in with you in advance. If you want me to monitor you for signs of distress, I'll need to know your "tells" (for me, one is that I start rubbing my throat when I'm getting stressed).

I'd be very, very interested to hear from people about what steps I'm missing, because inevitably there'll be some ;) And also how this matches up with your concept of medical advocacy, if you had one, and so on and so forth!
kaberett: Overlaid Mars & Venus symbols, with Swiss Army knife tools at other positions around the central circle. (swiss army gender)
As ever, this goes for me only. Do not assume that anyone else does - or should - take the same attitude as I do at this stage in my life. [I note also that this is not intended for people who are misgendering me maliciously (hint: not okay).]

And with that out of the way, let's move on to the body of the post. )

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kaberett: Overlaid Mars & Venus symbols, with Swiss Army knife tools at other positions around the central circle. (Default)
kaberett

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